DOWN SYNDROME: HOW YOU CAN HELP INCREASE THE LIFE EXPECTANCY OF THOSE AFFECTED.
According to the National Down Syndrome Society, the life expectancy of people with down syndrome in 1983 was reported to be 25 years. In recent years, individuals with DS have been known to live into their sixties. Down syndrome occurs because of an extra copy of chromosome 21 which leads to developmental delays, mental and physical challenges. The disorder cannot be prevented and is not caused by what a parent did or didn’t do. However, with a great support system, individuals with DS lead a long, happy, and fulfilled life.
Why is a strong support system advocated?
In recent years, individuals with Down syndrome have showcased remarkable abilities, prompting a shift in societal perceptions and acceptance of their roles within the community. Research indicates that these individuals tend to meet the elevated expectations set by their families and society when they receive sufficient support and encouragement. Rusell O’Grady, McDonald’s employee for 32 years, exemplifies an individual with Down syndrome who led a joyful life, spreading smiles each day despite his challenges. For children born with Down Syndrome, early intervention services like Physical therapy, occupational therapy, and speech/feeding therapy can help boost their development. A great support from the family makes living to their fullest potential possible. In addition, DS comes with several health challenges including heart defects, hearing and vision problems, thyroid disorders, Alzheimer’s disease, and immune system deficiencies. Studies show that approximately 40% to 50% of children with DS are born with congenital heart defects (CHD). But with regular medical check-ups, early interventions, and lifelong healthcare support, the quality of life of these individuals can be improved.
How can we support people with DS to improve their Life Expectancy?
1. Promotion of Early and Regular Healthcare:
DS comes with multiple health challenges necessitating proactive medical intervention and routine medical checkups. This enhances early development and ensures better health outcomes over time. If you find yourself in the same space with someone with DS, encourage them to go for regular screenings/ medical checkups as this aids early diagnosis and treatment. With early screenings and routine checkups, heart defects, hearing, and vision issues, coupled with hypothyroidism can be detected and managed, preventing future complications. In addition, timely intervention helps to maximize a child’s potential, which improves their independence and social inclusion.
2. Enhancing Cognitive and Emotional Well-being
Targeted support aimed at improving cognitive and emotional well-being help individuals with DS help reach their full potential and lead healthier, happier lives. For instance, speech therapy, occupational therapy, and specialized education improves memory, problem solving and language skills. Employing visual aids, along with repeated exposure and interactive tasks, significantly aids in information processing capabilities. Also, with counseling, support from peer groups, and mindfulness exercises, individuals with DS can manage stress and emotional distress effectively. Providing the right support leads to improved independence, better mental health, and longevity.
3. Strengthening Community Support and Inclusion
Building community support and fostering inclusion are essential for enhancing the quality of life, health outcomes, and life expectancy for individuals with Down syndrome. An inclusive community that fosters acceptance, accessibility, and equal opportunities cultivates an atmosphere in which individuals with Down syndrome can thrive and reach their maximum potential. Schools and workplaces should endeavor to provide an inclusive environment as this would not only build their self-esteem but improve confidence as well. Fostering a more inclusive society benefits everyone involved. It not only aids individuals with Down syndrome but also enriches the entire community by encouraging diversity, empathy, and a collective spirit.
In accordance with the 2025 World Down Syndrome theme, “Improve Our Support Systems,” lets us collaborate to enhance the support provided to individuals with Down syndrome, enabling them to lead healthier, happier, and more fulfilling lives.
